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South Devon Carers' Consortium

"Identifies, values, supports and promotes carers"

 

News 'n' Views

Issue no. 28     Winter 2002
Winter Chills

Yes it’s that time again to get those woollies out and wrap up warm!

However, before you venture out, sit in front of your nice, warm fire and take in the latest edition packed with interesting articles that may spur you into action during the cold winter nights!

The Kiloran Trust -Caring for Carers

Kiloran is a registered charity that offers full time carers a 5 night break in their West London house. The house has 4 ensuite spacious bedrooms, and is informal, friendly, warm and relaxed.

You can spend your time as you want - sightseeing, resting, shopping, walking in the parks or along the river, seeing friends, or going to a West End show.

Through their own fund raising programme, Kiloran are able to keep the cost to carers at £40 per night, however for those on low benefits, Kiloran can help set up arrangements to get the cost of the stay covered.

Why not give them a ring on 020 7602 7404 or you can write to them for further information at: The Kiloran Trust, 157 Blythe Road, London, W14 0HL.

Ring Around Carers…

...is a “meeting place on the phone” for carers. It’s a chance for anyone who looks after a friend or family member to have a regular, friendly chat with other carers in their area.

It’s a new project set up by the BBC and Community Network, and it’s confidential and free.

Ring Around Carers means that you can meet a group of like minded people without leaving your home. The weekly chat lasts less than an hour, but it’s time for you - the carer - to talk about the things that interest you.

If you want to know more, ring the BBC Radio Devon Action Desk on (01752) 255500 or (01392) 490200 and they’ll provide you with more details. The lines are open Monday to Friday 9-5pm.

Carers Soapbox

Ms D of Newton Abbot writes:

I am a carer for a lady who has muscular dystrophy and her mobility is poor. I am a single mother of 2 on ICA topped up with Income Support. As we are both under 60 we both feel discriminated against due to our age over the Winter Fuel Payments.

During the winter we have to have the heating on constantly but are expected to find this extra money out of our benefits, which do not increase in the winter for heating. I think the Winter Fuel Payment is a good thing especially for the over 60’s, but not everyone needs it financially and after all there are younger, less mobile people that do!

Come on, Tony Blair, you’ve sorted out the ICA for carers, now sort out the Winter Fuel Payment in the same manner!

Mr G of Torbay writes:

Caring for a dementia patient is an increasingly difficult task as time goes by. A helpful service provider would be somebody who visits the carer and patient to ensure that the best use is made of the services available, help manage difficult situations, and be easily contactable for advice.

Stressful situations arise in which the carer becomes entangled and, when this happens, the carer may not think clearly, adding to the stress. This could be minimised with some prior knowledge, preparation and a knowledgeable person to talk to.

Examples of causes of stress include how to handle my wife’s hallucinations and medical condition. She needs attention every few minutes in the day, wakes at frequent intervals in the night, and sometimes insists on going out to look for the dog in the rain and middle of the night (we don’t have a dog). Before I knew about hospital respite care, it was also a hassle trying to arrange respite. Things that could help minimise Carer Stress are:

Knowing about the patient’s condition and what might happen

Readily available list of services & contacts

Preparing the home

Tips for keeping the patient occupied

Perhaps someone could make an attempt at addressing these issues in an effort to alleviate an already stressful situation.

In response to BS of Paignton, who wrote in the Summer edition about respite, a representative from Torbay Social Services writes:

We have reviewed the issues surrounding respite care and have agreed that where a person has an established pattern of taking respite stays in an independent home, then we will continue with this arrangement.

Do you get angry? If so, let us know why, in time for the next newsletter. Use this space to raise issues of interest to you and we will endeavour to get your questions answered!

A Carers Lotto!

Carers UK are introducing their very own Carers Lottery, where Associate Members who participate will have an opportunity to raise money for their own project or group.

How does it work

Each participating Associate Member finds 100 members who are interested in taking part

Each interested person agrees to take part for one year, and pays £4.00 per month collected via Direct Debit

£4.00 buys two chances to be entered into the monthly draw

Benefits

Three prize winners per month (per lottery) 1st - £100, 2nd - £50, 3rd - £25 = better odds than the National Lottery!

£50 per month for the project or group to spend as they wish - a thank you for providing 100 names

The winners will be contacted directly

Interested?

If you are interested, then you need to collate a list of 100 names and addresses of people who want to take part, and send them to Gail Walton, Carers UK, Freepost KE8764, London, EC1B 1AE, or telephone her on (020) 7566 7634 for further information.

Employers urged to help carers

Millions of people who look after ailing parents are getting a raw deal from their bosses. Many companies fail to give staff the flexibility they need to look after older family members, a report by the Joseph Rowntree Foundation has found.

An estimated 2.7m people who work also informally look after an elderly parent or parent-in-law.

In its report, the think tank calls for companies to be more understanding, and to allow staff with caring commitments to work flexible hours.

The study also found that most employees were unwilling to ask managers for time off to help them deal with the demands of looking after an older relative.

The study concluded that better communication within companies and improved training of managers could help tackle some of the problems.

Positive Lifestyle
Relaxation Day for Carers

Lifestyle consultant, Caroline Harris, is running her next course on February 19th 2003 at Brunel Manor, Teignmouth Road, Torquay. 10am-4pm (9.30am for coffee). Cost for Torbay carers £3 (others £5) to include refreshments and lunch.

Contact Amanda Massey to book a place on (01803) 526808, or for further information about the course, contact Caroline Harris on (01803) 872828.

Carers OnLine

The Carers OnLine site contains information for Carers in Devon. It is constantly being improved, and includes services provided to carers who live in the Devon Council area and lots of links to other carers sites.

To go to the site click on www.devon.gov.uk/carers

Standards Toolkit

Roger Blunden of the Kings Fund has produced a toolkit to help local services meet the Government backed quality standards in relation to information, providing a break, emotional support, supporting carer health, and carers having a voice. The toolkit can be used for any service that supports carers such a GP surgeries, social services departments, the voluntary sector, housing, and employment services.

Copies of “How Good is Your Service to Carers: A Guide to checking quality standards for local carer support services” are available from the Kings Fund (020) 7307 2591 (cost £5.50 inc p&p).


South Hams & West Devon Supplement

New Learning Disability Development Team for Devon

June Wilkins is the Carers Development Worker for the Learning Disability Development Team for Devon, based in Exeter.

Her post is to ensure that Learning Disability carers are represented on all groups and sub groups involved in planning services for adults with learning disabilities in Devon. Also to develop Learning Disability Carers’ Forums across Devon in areas where they are non existent, and to make sure that existing groups link in with local planning groups, county planning groups and other carers’ forums.

Her post is also trying to identify hidden carers over the age of 65, whose sons or daughters live at home with them but are unknown to any community teams in the South Hams & West Devon area.

To this end, please read the enclosed leaflet, and if it doesn’t apply to you but you know somebody it could help, please pass it on to them. Thank you.

If you would prefer to contact June direct, you can write to her c/o Learning Disability Development Team, 54 Magdalen Road, Exeter, EX2 4TL, or telephone her on (01392) 686246.

Benefits Information Sessions

Are you getting what you’re entitled to?, Confused by the Benefits system? Then come along to the free Benefits Information Sessions for carers in South Hams and West Devon.

Diana Eastman, the Carers Link Worker, will be presenting 5 sessions during February and March in Totnes, Tavistock, Kingsbridge, Ivybridge and Dartmouth.

The sessions will take place between 10.30am and 12.30pm and will include lunch.

If you wish to attend, then please contact South Devon Carers Consortium on (01803) 294275


Teignbridge Supplement
Total Communication - Foundation Level Course

This is a two day course in communication for parents, friends, carers or staff working with people with learning disabilities.

It aims to help people gain knowledge about communication and the difficulties experienced by people with learning difficulties.

This is a practically based course and there will be a Certificate of Attendance for all participants.

The cost of the course is £5 and they are being run on 9th & 10th April and the 8th and 9th May

For further information of the course and dates, please contact Charlotte Smith, Chief Speech & Language Therapist, c/o the Learning Disabilities Team at Newton Abbot on (01626) 216280.


Torbay Supplement

Carers Participation Scheme

Person Centred Change

Jane Goodwill (Torbay Social Services) has been invited to meet carers for a discussion about “Person Centred Planning” and about transition arrangements for those with a learning disability - that is, children’s transition to adult services, and also for adults facing changes as their carer gets older. This will be on Thursday 16 January, 10.30am to 12.00 at Parkfield House, Paignton.

Meetings to hear about service developments and discuss views have been arranged for Carers of Older People on Wednesday 12 February 2pm-3.30pm & Carers for People with a Physical Disability on Monday 17 February 2pm – 3.30pm.

All meetings at Parkfield House, 38 Esplanade Road, Paignton. Details from Amanda Woolley (01803) 294275.

Carers Relaxation and Self-Care Courses

Community Education, in partnership with Social Services, is now running daytime courses for carers in Brixham and Torquay. Courses are typically 5 sessions and focus on teaching skills like relaxation, positive thinking, healthy living and assertiveness.

For details of Brixham courses contact Jenny Harriman on (01803) 853302, and for Torquay courses ring (01803) 316930.

Cyber Café for Over 55’s

Age Concern Torbay are launching free internet and e-mail access to people over the age of 55 years and for their carers and relatives.

The Cyber Café is situated at Age Concern Torbay Luncheon and Leisure Club, Torhill Road, Torquay. Telephone (01803) 292060 / 298254

You do not need to be a member of Age Concern (Torbay), however you will need to register with them before you are able to proceed.

Also, if you are interested in helping to provide information and advice to older people please contact Jenny Gaywood on the above number, or e-mail her on torhill@ageconcerntorbay.org.uk

HIV Services in Torbay

Positive Action (South West) provide help and support to people affected by HIV and their carers in the Torbay area.

They can help clients with a whole host of practical issues including benefits, debts, and housing, as well as addressing a whole series of medical issues connected with HIV. At the same time, they provide complimentary therapies and counselling, which are all of great benefit to their clients.

Laura Ross works as a HIV Client Services Co-ordinator, and is available from their drop-in centre two days a week (on Thursdays and Fridays). The centre welcomes anybody who is HIV positive, or a carer for someone who is HIV positive.

For further information or help, Laura can be contacted on (01803) 292629 on Thursdays and Fridays.

The Next Step Project

Are you out of step with the rest of the world? Confidence level at Zero? Then the Next Step Project is a way of:

Developing your skills

Learning new things

Making new friends

Finding out what you’re good at

Funded by Torbay Council and Community Education, in conjunction with your local surgery/health clinic, the Project is a good opportunity to gain support for yourself, find ways of building your confidence, and feel better about who you are and where you’re going.

For further information, contact Anne Hammett at Next Step, Education Services Directorate, Oldway Mansion, Torquay Road, Paignton, TQ3 2TE, or telephone her on (01803) 208278.

 

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