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South Devon Carers' Consortium

"Identifies, values, supports and promotes carers"

 

News 'n' Views

Issue no. 32     Winter 2003
During that past…
...eight years of carrying out our purpose of “identifying, valuing, supporting and promoting carers” we have noticed a gradual change in the climate of awareness about carers’ concerns, and more efforts by service providers to provide practical help. No doubt there is a long way to go, and people’s needs and experiences vary. However, here’s hoping this instalment of News & View brings you some useful New Year tips.
Good news for Benefits claimants in hospital

Following the budget announcement, the regulations and guidance on the downrating of Benefits during periods spent in hospital have now been published. The new rules mean that claimants will be able to keep their full rate of certain Benefits for hospital stays of up to 52 weeks, rather than their Benefit being downrated at intervals as before.

The rules apply to Retirement Pension, Pension Credit, Bereavement Allowance, Widowed Parents Allowance, Widowed Mothers Allowance, Widows Pension, Incapacity Benefit, Severe Disablement Allowance, Income Support, Minimum Income Guarantee, Housing Benefit, Council Tax Benefit.

Downrating will now not occur until the claimant has been in hospital for 52 weeks, rather than at the previous intervals. The change came into effect from 21 May 2003. Anyone who entered hospital on or after 9 April 2003 will not have their Benefit downrated unless and until they receive more than 52 weeks hospital in-patient treatment.

Unfortunately, Attendance Allowance, Disability Living Allowance and Carer’s Allowance are not affected by the change. These benefits will continue to be suspended after 4 weeks as a hospital in-patient.

Campaign via the internet!

Carers UK has launched “e carers” - for anyone with access to the internet and who is interested in campaigning on behalf of carers.

To join, simply send an email to campaign@carersnorth.demon.co.uk. Write the word ‘subscribe’ in the subject line. You will then be sent confirmation that you have been added to the network of online campaigners!

Carers Soapbox
Mrs P writes

I fully agree with Mr S (Issue no. 31) and have tried ways and means to help myself, eg a letter to the Minister of Health with my grievances, but received a reply saying how much money the government has put into the NHS. My response was that unless it helped me, which it hasn’t, it’s useless.

I am 87 and look after my husband who is 85. He is WW2 disabled and his disabilities stem from the war and being a prisoner of war for 5 years. I am an unpaid carer and get an Attendance Allowance. As old age is now no ban, I applied for help and was asked if I had an old age pension, the answer ‘yes’, so I was told in a very abrupt tone of voice, I was entitled to nothing.

This OAP has paid all my working life for my old age - not for looking after a disabled husband. I have been off sick very occasionally and then had to pay someone to look after my husband. My husband has a care assistant to undress him at night, and another to wash and dress him in the morning. In order to have ’fairer charging’ the Council sent ’Age Concern’ to see if we were getting all entitlements - the one question they asked “are you getting an OAP”, which he is. So the ’fair-charging’ was increased from £9 to £10 per hour.

I wonder if any of these people ask themselves where they would be but for the millions dead, and those still alive but unable to help themselves through fighting for their country. It isn’t just looking after my husband, but coping also with such things as an overflow in the toilet.

My doctor mentioned my plight at a committee meeting of Social Services and other ‘carers’ - ‘somebody would be in touch’ - but I haven’t heard a word. It is like all these people who give advice but don’t actually do anything. I said this to the doctor who just smiled!

Relate Services

Relate exists to promote healthy relationships, and is the largest provider of couple counselling in the UK. All sorts of people come to Relate and find it helps them to understand what’s going on in their relationships and change things for the better.

They offer counselling and support for couples or individuals, married or not, gay or heterosexual, who are experiencing difficulties in their relationships. Counselling is available at their main office in Torquay, and on certain days at outposts throughout South Devon - in Paignton, Newton Abbot, Ashburton, Totnes and Kingsbridge. Sex therapy is currently available in Torquay, Newton Abbot and Kingsbridge.

Clients can make an appointment for any of these services by calling the main office in Torquay on (01803) 297854.

Learning for Living - Online Learning for Carers

City & Guilds is the leading provider of vocational qualifications in the UK. It is now extending its commitment to E-learning, and is launching a new online learning product aimed at informal or unpaid carers.

Learning for Living - Online Learning for Carers is a web based learning tool that will comprise of 4 modules, each made up of 4 units. Certification will be available for those learners who complete the assessment requirements, although it will be possible for those who only wish to access the learning to do just this. Interested carers or carers organisations should,. in the first instance, contact City & Guilds Customer Service Team on (020) 7294 2800, or email enquiry@city-and-guilds.co.uk

CARERSLINE

0808 808 7777

CarersLine is Carers UK’s free, national helpline for carers and people who help carers. It offers expert advice on benefits, community care and other carers’ centres and support groups.

Unfortunately, due to funding problems, the service offered by CarersLine has now been restricted in terms of the days and times it is open.

CarersLine is now available to callers at the following times:

Wednesdays:

10 am to midday and 2 pm to 4 pm

Thursdays:

10 am to midday and 2 pm to 4 pm

Information for carers is still available on www.carersonline.org.uk

Carers UK regrets having to reduce the service. They are seeking alternative funding for CarersLine, and hope that this restriction will be temporary.

”At last a book that tackles the issues that really concern Britain’s 6 million carers” -

The Selfish Pig’s Guide to Caring

Oddly, though carers by definition are anything but selfish pigs, they are liable to feelings of guilt, probably brought on by fatigue and isolation. So Hugh Marriott has written this book for them - and also for the rest of us who hadn’t realized what went on behind those closed doors.

His aim in writing the book was to bring into the open everything he wished he had been told when he first became a carer...and he does. The book airs topics such as sex, coping with incontinence, dealing with the responses of friends and officials who fail to understand, and even thoughts of murder!

It is thought-provoking, informative and brutally frank, but also funny and moving.

If you would like a copy (price £9.95) you can order it from your local bookstore, or contact Polperro Heritage Press, Clifton-upon-Teme, Worcestershire, WR6 6EN.

Tel (01886) 812304 or email polperro.press@virgin.net

Are your needs being met?

Do you take care of a family member, friend or neighbour? Do you feel you get enough help from the different services to support you in your caring role. If not, have you asked Social Services to come and assess your own needs as a carer?

If you have not yet received a Carers Assessment, then it is your right to ask for one! Contact your nearest Social Services office, and ask for a Carers Assessment for yourself.

Even if Social Services may not be able to provide just the type of service you need, it is important that they get to know, and formally record, what you do need. If Social Services do not record the unmet needs of carers, the services you do need may never be developed.

Did you know…?
...UCI and Warner Cinemas now allow carers a FREE ticket when accompanying a disabled person to the cinema. You will need to make a reservation at the Box Office or by telephoning (08700) 102030.

South Hams & West Devon Supplement
Competition time!

In preparing for next year’s Celebration for Carers at Exeter Cathedral during Carers Week, the organising committee have launched a competition. There are 2 prizes, each of a £20 gift voucher.

One is for a young carer to design the cover of the order of service, and the other is for a carer (over 18) to write a poem on the theme of health. This should be no more than 20 lines, and will be read out at the service by the writer (or someone else, if preferred). Entries should be sent to Sonia Barton, Westbank League of Friends, Farmhouse Rise, Exminster, EX6 8AL. They need to reach her by the end of March, and will be judged by the organising committee.

Devon Parent Partnership Service

This service provides independent information, sign-posting, support and guidance to parents and carers who have children with special educational needs. Help can be gained on school action, school action plus, assessment and statementing. The service also provides information for parents who have a concern about their child and wondering if they may have a special educational need.

Various training opportunities or workshops around the Code of Practice are offered for parents and professionals. Courses can also be tailor-made to parents requirements. If you would like more information, please do not hesitate to contact your area Development Worker, Maddalena Cawse, on (01752) 872799.

How to handle your anger

Does your caring role get you down sometimes? Do you sometimes feel frustrated to the point where you want to hit out at somebody?

Some carers recently attended a session on ‘anger management’ and found it to be really helpful. If you think you might benefit from attending such a session as this, please give Claudia Benzies (Carers One-to-One Link) a ring on (01803) 712669. Everyone experiences ‘negative emotions’ at some stage, so this is not a session for ‘abnormal’ carers, but it may help you handle these feelings in a more constructive and healthy way.

KeySafe - for the safety of you and your cared-for

Have you thought how care workers or emergency services would get into your house if you were laid low with an illness or were out of the house. Can the person you care for open the front door easily by themselves?

KeySafe is a secure way of allowing authorised persons to enter your property, by way of a small security box attached to the outside of your property. This box contains your front door key, but it can only be opened if the person has the right code.

This is ideal if you carry a Carers’ Emergency Response Card (the scheme operated by the South Hams & West Devon Carers Link). If you are out and fall ill, for example, Call24Hour alarm centre could have the KeySafe code, and would be able to give it to the Emergency Services, if they need to be called out to look after your cared-for person at home.

If you or your cared-for is disabled or over 60, the Handyperson Scheme (run by Care & Repair) can supply and fit the KeySafe for £36. There is no charge if you are in receipt of Income Support. Even if you are not eligible for this help, anyone can still buy a KeySafe of their own for £45.37 (inc VAT & delivery).

This is a much safer alternative to leaving your door key under a mat or plant pot, or leaving the door unlocked for visitors (which can make your home insurance policy void).

For more information, call the Handyperson Scheme on (01752) 892704. Alternatively, call KeySafe on (01905) 797772, or email them at sales@keysafe.co.uk (www.keysafe.co.uk)

Change of Link person

Diana Eastman, SDCC’s member of staff who set up the Carers Link and Emergency Response Card Scheme for South Hams & West Devon, has left her post after 2½ years to move onto other things. She has done an excellent job, and she will be missed by all her colleagues.

Sue Hurley has taken up the baton in Diana’s place, and can be contacted on the same number - (01803) 862622 (extension 201). At least initially, Sue will work the same days, ie Tuesday and Friday mornings. An answerphone can record your messages in-between times.

If you have not yet joined the Carers Link or received your Carers Emergency Response Card, please give Sue a call!


Teignbridge Supplement
Services for People with Disabilities

Teignbridge District Council has produced a leaflet that outlines useful information and contact details aimed at making a range of services more accessible, as well as raising awareness of their existence.

Copies of the leaflet are available from the Council’s Main Reception at Forde House and the Tourist Information Centres, or contact Colin Slocombe on (01626) 215893. The information is also available on the Council’s web site at www.teignbridge.gov.uk (A-Z of services under ‘D’ Disabilities - services provided by Teignbridge).

Competition time!

In preparing for next year’s Celebration for Carers at Exeter Cathedral during Carers Week, the organising committee have launched a competition. There are 2 prizes, each of a £20 gift voucher.

One is for a young carer to design the cover of the order of service, and the other is for a carer (over 18) to write a poem on the theme of health. This should be no more than 20 lines, and will be read out at the service by the writer (or someone else, if preferred). Entries should be sent to Sonia Barton, Westbank League of Friends, Farmhouse Rise, Exminster, EX6 8AL. They will need to reach her by the end of March, and will be judged by the organising committee.

Devon Parent Partnership Service

This service provides independent information, sign-posting, support and guidance to parents and carers who have children with special educational needs. Help can be gained on school action, school action plus, assessment and statementing. The service also provides information for parents who have a concern about their child and wondering if they may have a special educational need.

Various training opportunities or workshops around the Code of Practice are offered for parents and professionals. Courses can also be tailor-made to parents requirements. If you would like more information, please do not hesitate to contact your area Development Worker, Liz Batchelor., on (01803) 527849.

How to handle your anger

Does your caring role get you down sometimes? Do you sometimes feel frustrated to the point where you want to hit out at somebody?

Some carers recently attended a session on ‘anger management’ and found it to be really helpful. If you think you might benefit from attending such a session as this, please give Claudia Benzies (Carers One-to-One Link) a ring on (01803) 712669. Everyone experiences ‘negative emotions’ at some stage, so this is not a session for ‘abnormal’ carers, but it may help you to handle these feelings in a more constructive and healthy way.

KeySafe - for the safety of you and your cared-for

Have you thought how care workers or emergency services would get into your house if you were laid low with an illness or were out of the house. Can the person you care for open the front door easily by themselves?

KeySafe is a secure way of allowing authorised persons to enter your property, by way of a small security box attached to the outside of your property. This box contains your front door key, but it can only be opened if the person has the right security code. This is ideal if you carry a Carers’ Emergency Response Card (the scheme operated by the Teignbridge Carers Link). If you are out and fall ill, for example, TeignCare alarm centre could have the KeySafe code, and would be able to give it to the Emergency Services, if they need to be called out to look after your cared-for person at home.

Devon Social Services can arrange to fit a KeySafe free of charge for people that meet certain criteria, eg people who are in need of domiciliary care services, are alone for substantial parts of the day (eg while their carer is working), or have difficulty getting to the door. Even if you are not eligible, you can still buy a KeySafe of your own for £45.37 (inc VAT & delivery).

This is a much safer alternative to leaving your door key under a mat or plant pot, or leaving the door unlocked for visitors (which can make your home insurance policy void). For more information, call your local Social Services office. Alternatively, call KeySafe on (01905) 797772, or you can email sales@keysafe.co.uk

Recharge with a difference
Following the advice of the carers who have attended leisure days organised by SDCC, we have planned a trip with a difference for 3 March. This event will consist of lunch at the Northcott Theatre, followed by an early afternoon performance of Pygmalion. This should be a very relaxing day, and transport to and from the Theatre will be arranged. You should find a booking form enclosed with this newsletter (£3 per person). If not, let us know (details below) and we will send one to you.

Torbay Supplement
Counselling Service Gets the Credit it Deserves

The South Devon Coalition of Disabled People are pleased to announce the continuation of their ’Free and Confidential Counselling Service’ - thanks to the Torbay Primary Care Trust. The Coalition have just been notified that they have been successful in their bid to operate this new ad innovative project for a further six months. Counselling Manager Debbie Forte says “We are unique to the bay and if the local community decide that it is a service that they value, then long term funding will inevitably be our next challenge”.


The coalition has 5 counsellors who are funded specifically to provide counselling to disabled adults and children living in the area of Torbay. Appointments need to be booked in advance.


Counselling provides the opportunity for people to explore their thoughts and feelings in a safe and supportive environment, which is confidential and non-judgemental.


The service is provided at premises which have complete disabled access. Debbie added “However if we are successful after March 2004, we will be able to extend this service to carers. It would be really helpful to have some feedback on the perceived usefulness to this addition” If you have any views you would like to share then please contact Debbie.

If you think you may benefit from receiving counselling, or would like to further information about the service, please do not hesitate to contact Debbie or Marion on (01803) 215871 or email them at CounsellingService@Southdevoncdp.fsnet.co.uk

Do you have a physical, sensory, mental health or learning

disability? Are you a Carer?

Would you like more choice and control over the community care services you receive from Social Services? Would you like to choose who provides services for you, when they provide them and how they provide them? Take control now!

Contact Torbay Direct Payments Development Worker, Judy Grant, to find out how they can help you achieve this. Tel (01803) 201563 (South Devon Coalition of Disabled People).

Dates for your Diary…

Torquay Carers Support Group -

Croft Hall Medical Practice, Croft Road, Torquay. Meetings are held on 1st Monday of the month, 2.30-4.00pm.

5 January for Paper Craft by Samm’s of Lucius St,

2 February for Demonstration of Reflexology,

1 March for Gardeners Tales & Wildlife Slides.

For details contact Barbara Relph on (01803) 605359.

Housing Options for People with Learning Disabilities

The Torbay Learning Disability Partnership have put together a day to provide carers with information about housing options for people with learning disabilities. There will be workshops, stands and information about the different ways people with learning disabilities can access housing and support. Keynote speaker will be Maurice Harker from Housing Options.

Date: Friday 27 February 2004

Venue: The Riviera Centre

Help will be available to provide support to someone on the day. Any enquiries should go to James Drummond on (01803) 208438.

First Aid and Manual / Patient

Handling Training for Carers

Specifically designed by St John Ambulance to cover two key areas of learning for family carers. Each course will have 2 sessions of 3 hours (10.00am - 1.00pm). Session 1 deals with incidents, basic resuscitation, heart attacks and strokes, burns, scolds, poisoning, choking, shock, bleeding and fractures. Session 2 covers back injury, risk assessment in moving and handling, safe moving techniques, safe patient handling between bed and wheelchair, etc.

Session 1 - 8 January (Paignton)

Session 2 - 29 January (Paignton)

Session 1 - 16 January (Torquay)

Session 2 - 30 January (Torquay)

The course if FREE to carers - arrangements can be made for transport, or to look after the cared for person if required. For a booking form or any questions about the course, ring James Drummond on (01803) 208438.

Carers Participation Scheme
Carers representatives are doing a great job of putting carers views forward into health and social services planning. For an update on their work on Torbay Partnership Committee task groups, contact Amanda Woolley, the Carers Participation Worker, at SDCC on (01803) 294275.
Co-Counselling for Carers

When only a small number of people were available to take up the co-counselling course offered this autumn, we at first wondered whether to continue, but carried on in response to the enthusiasm of those who did attend. Now nearing the end, both participants and facilitators agree it has been good fun and of great benefit to all of us. It has proved itself not only as a form of stress relief, but also as a way to practice effective listening in support of our own and others caring role.


Inspired by the way it is already having an impact in the lives of those carers learning it, Amanda Woolley and Helen Bourne have decided to offer another free co-counselling course for carers in the New Year. There is an introductory talk on Wednesday 21 January 10.30 – 12.30 at St Paul’s Church Hall, Torquay Road, Preston. If you can’t make that event and/or want more details about what co-counselling involves please contact Amanda on (01803) 294275.

Recharging events

Once again SDCC is organising the ever popular leisure events at the Redcliffe Hotel this year. Carers will be able to attend on either 26 February or 12 March. These events include a range of fun and relaxing activities, as well as hands-on therapies (eg back massage, reflexology).

If you haven’t been before, it is well worth the effort to go! You should find a booking form enclosed with this newsletter. If not, please contact us (details below), and ask to be sent one. Please note that this year, groups of carers can still pay for their tickets together (£3 per head), but every member must fill in a booking form separately. Please ask us for more if you need them.

 

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